Most rare diseases do not have a cure. Cohabitation with a rare disease imposes on the sick and their families an experience of continuous learning. Programs are often distorted by events, the hardest part is managing to handle the events and not suffer them, which is not always possible. The hope of being able to reach a goal must never be missing, although small it always represents a stimulus. This association was founded by a family with two daughters carrying this disease to support research funding and sharing experiences with other families living with DADA2.